Saturday, January 21, 2012

More about the Diagnosis Change

I have performed some research over the past day and examined arguments both in favor and against this proposed change in the autism diagnosis.

One argument I have seen used against those with Aspergers Syndrome (who are spearheading strongly against the proposed changes) is that those with Aspergers are against change and their reaction is nothing more than the expression of their discomfort.  One doctor was quoted as saying she was "sorry" that she offended those with Aspergers who are against the changes.  This same article stated that those who are against these changes feel that their identity is threatened but the changes did "make scientific sense."

It is true that those with Aspergers Syndrome, and autism in general, are uncomfortable with change, more so than those off the spectrum. This is a well know trait that we have, my self included.  After my post last night, I wanted to take a step back and look at this differently.

I want to make clear that the only objection I have against this change in diagnosis is the denial of necessary services to those who may not meet the new criteria but still need some help.  If those who are on the milder end of the spectrum still receive the services they would have other wise received under the previous diagnosis requirements, then I have no objection to these changes.  If these changes make things easier/better for those whose lives are impacted by the spectrum, then by all means, implement the changes.

To read the MSNBC article referenced in this blog post, click the following link:


  1. What about the time it will take for all of the pdd-nos or asperger's kids to get re-evaluated? How long will my daughter have to wait for an appointment by a psychologist to get her re-evaluated? Will my insurance discontinue her right to receive ABA because she all of a sudden has NO diagnosis, while shes got to wait a year to get re- evaluated, then another month or so for the psychologist to complete the report, then another 2 months or so to get her back in the insurance program ,then another month forth referral? Whose going to be held accountable for the regression of skills ornlack of progress while we wait for the re-evaluations????????? This is a logistics nightmare waiting to happen!! Not to mention that my child has marked improve,net since she started ABA 4 months ago. That doesn't mean shes not on the spectrum anymore or shouldnt be worthy of the diagnosis. She's still got PDD...

  2. While my main concern was the denial of necessary services to those on the higher end of the spectrum, you have raised some very important issues connected to my objection to the changes. Listed above are all questions that health officials should be able to answer for parents and caregivers before any of these changes are implemented. If these changes "make scientific sense," then no one impacted by autism should have to go through any of the steps you listed above in your comment. I fully agree with you, Patti that, parents should NOT have to prove that their child qualifies for the same services they receive under the current diagnosis requirements. Also, as you said, the time taken to react to the changes takes away from precious time that your daughter needs to develop, adapt, and learn. I have PDD-NOS myself and there is a possibility that these changes could impact the medicine I need to concentrate in school and complete all of the endeavors I am undertaking. Everything I have worked for to get where I am today could be taken away if this changes were to occur leaving me struggling to compensate. If none of these services that I or anyone on the spectrum receive currently are altered or denied, then I have no objection to these changes. However, if hassles are created and service is denied to those who currently qualify for them, then I am strongly against these changes.