Sunday, March 25, 2012

Junior Positively Autistic Ryans Spectrum Talk 03/25 by Positively Autistic | Blog Talk Radio


Join me for Junior Positively Autistic: Ryan's Spectrum Talk as I discuss autism awareness month.  Every April, special consideration is taken to the autism spectrum, so this is the perfect time to put in that extra effort to better understand autism and the special gifts and talents hidden within many autistic individuals.  
The show will air Monday, March 26 at 1 pm EST, 10 am PST, and 6 pm UK time.  Remember that you can call into the show by dialing (629) 393-2848 or you can call in through Skype!


Junior Positively Autistic Ryans Spectrum Talk 03/26 by Positively Autistic | Blog Talk Radio

An Inspiring Friend


Here is an article written about my friend Jerry Wolffe, who writes for The Oakland Press and advocates for those who are disabled.  Jerry broke through so many barriers growing up to become the journalist and advocate he is today.  He told me at one point that I would go further than he ever did as a disability advocate and a writer.  A tall order, considering how much Jerry, himself, has accomplished.  To read more, click on the following link:

Thursday, March 22, 2012

Don't Say it Can't be Done

It has been a dream of mine to become a world renowned fantasy author.  Yesterday, I was informed that a science fiction short story that I had submitted for publication had been accepted for publication in a journal published at the university I attend.  My first, and by no means my last, piece of published fiction.  For those who are struggling with the difficulties associated with autism at present, my message is: don't lose hope.  Never say that it can't be done.

Sunday, March 18, 2012

Junior Positively Autistic Ryans Spectrum Talk 03/19 by Positively Autistic | Blog Talk Radio

Join me for Junior Positively Autistic: Ryan's Spectrum talk for Monday, March 19th, 2012.  During this broadcast, I will be talking about my experiences with autism and bullying.  Remember that you can call into the show by dialing (619) 39-2848 or you can call in through Skype.  I'm looking forward to hearing from you if you have time to tune in!  If not, you can click on this same link to listen to the on-demand version after the show has concluded!

Junior Positively Autistic Ryans Spectrum Talk 03/19 by Positively Autistic | Blog Talk Radio

Saturday, March 17, 2012

Autism and Bullying: Part One

In previous blog posts, I have discussed many times about my difficulties that I endured during middle school.  While most of those difficulties were dealt with internally between myself, one of the external difficulties was bullying.  Middle school students can really be the cruelest people imaginable to someone who does not fit the unspoken criteria of what is socially acceptable.  It was really the perfect storm in my case.

To start with, I have a personality type that accounts for only one percent of the population (INFP), which accounts for individuals who are passive in appearance but really hide deep feeling and sensitivity.  In other words, I could take taunts from bullies without a word but feel the pain for years.  Also, I was dealing with mild autism.  Put an idealistic perfectionist in a body/mind that does not operates on a different system from most other people and you get someone like me who will push the limits of my own condition and ridicule myself for any perceived failures. Put that kind of a person (me) in a situation where he feels socially inferior, you get a depression so deep that the shadow of which can still be felt today, amid all my success.

There were a few bully's during this time that went out of their way to make my life miserable.  However, the majority of people considered me to be an outsider.  It was less how people viewed me and more to do with how I thought other people viewed me.  My entire sixth grade year, I ate lunch alone with the exception of another troubled kid who I could not stand but said nothing about it.

Even these days, while I am striving for greatness as a writer, I still have to endure the doubt and intense internal conflict associated with my personality type, all invisible to people who come associate with me on a day to day basis..  All things considered, I am my own worst enemy at times.  

Thursday, March 15, 2012

A Note to my Readers


Hello all,

I wanted to take time in this blog post to ask my readers if you feel that you are benefiting from my words presented in this blog.  I can talk about aspects of living on the spectrum that seem important to me but I don't know if anyone is benefiting from that.  Are there any topics that you would like me to discuss on The Voice from the Spectrum that might help you to better understand your autistic children or any students you might have that are on the autism spectrum?  If you are uncomfortable leaving public comments but would still like your concerns addressed, you can email me your topic ideas or questions at rcoakland2012@gmail.com.  Also, I am open to any ideas for radio topics that you would like me to speak about on Junior Positively Autistic's: Ryan's Spectrum Talk.  

For the past few months, I have been speaking of what I feel is important regarding autism awareness, but it brings me far greater satisfaction to know that I am helping you to better understand an elusive condition.  I might not have the answers you seek, but I promise that I will try as hard as I can to help you to better understand autism.

-Ryan Comins

Saturday, March 10, 2012

Junior Positively Autistic Ryans Spectrum Talk 03/12 by Positively Autistic | Blog Talk Radio

Join me for my fifth broadcast of Junior Positively Autistic: Ryan's Spectrum Talk.   This show will air this Monday at 1 pm EST, 10 am PST, and 6 pm UK time on blog talk radio.  During this broadcast, I will discuss my autism success story, emphasizing first the difficulties that I experienced when I was younger.  Remember that if you have any interest in coming on this show to share your own opinions, viewpoints, and experiences, you can call into the show by dialing (619) 393-4828 or you can call in by using Skype.  Tune into what will surely be another outstanding broadcast furthering the cause of autism awareness!

Junior Positively Autistic Ryans Spectrum Talk 03/12 by Positively Autistic | Blog Talk Radio

Handling Stress


Difficulties in life can by trying for anyone, but for an individual on the spectrum, they can sometimes become incapacitating.  At times, sometimes the knowledge that I had autism clouded my decision making process more than the actual impact of my autism characteristics.  For the longest time, I didn't know what it meant to have autism.  In one instance, I went as far as to say to a friend that those on the spectrum did not have feelings, which cannot be farther from the truth.  It is good for me that the friend in question refused to believe that statement.  Stress is hard for anyone, but I found myself blaming my autism at times, to take some accountability off of my own actions, even when justifying behaviors and choices to others.  Through that, I believe that individuals on the high functioning end of the spectrum should take responsibility for their own actions, and when autism impacts lives in adverse way, try to determine why that is the case.  Try to understand that stress is not easy for anyone, and autism does not exclude someone from the difficulties that those living off the spectrum experience as well.  This message is intended for high functioning adults on the spectrum. Those like me.


My Autism Success Story


For more than half my life, I have considered October 2000 to be the dividing point in my life.  This was when I was taken out of school to attend a day hospital in a neighboring town.  It was during this time when I officially received my autism diagnosis, at age twelve.  While it seemed like a dire point of my life at the time, I began to look at it in a different way as I continued to succeed academically and socially.

Prior to this period of my life, I had found myself in some sort of downward spiral for the two years leading up to that time.  To put it another way, it was like I was in quicksand; the harder I struggled, the more that I lost control of the situation.  There was less struggling involved then inwardly yearning for something more.  I found myself immersed in a chemical imbalance, due to the medications I was on at the time.  Depression was steadily gaining a foothold over the way I viewed myself, eroding my self esteem.  It is very difficult to write about this.  No words seem appropriate for what I was going through.  Always, in my mind, and on the outside as well, it seemed like I was the one to blame.  In reality, I was not accountable for myself, my actions in response to something inside of me that was outside of my control.

To put it mildly, I was the underdog.  No one really expected me to start succeeding in school, not even myself.  To make the A, B honor role, a year and a half after all this came into climax, it was nothing I could have predicted.  Although I tried hard in school, each year I half expected it to end, for things to reverse to what they had been previously.  Even now, as I surge forward with my writing career, basing the foundation around the same difficulties that brought me so much pain and grief at the time; I'm trying to use that time of my life as an example to help others like myself.  At age twelve upon receiving information that I would be leaving school for a day hospital, I was excited.  Just the previous day I had been goaded by classmates and was hard put to restrain myself from attacking my classmates for the pain they were carelessly causing me.  There were so many, I didn't know where to turn first.  Had I not left school to go to that day hospital when I did, I might have given into violence and things would have turned out differently.

I don't often think about that anymore.  Not when my life is better than it ever has been.  It is not without difficulty that I relate this in the hope that I might be able to help others to better understand one more viewpoint behind the eyes of the autism spectrum.

Sunday, March 4, 2012

Junior Positively Autistic Ryans Spectrum Talk 03/05 by Positively Autistic | Blog Talk Radio

Join me on Monday, March 5th for my fourth blog radio show, Junior Positively Autistic: Ryan's Spectrum Talk. This show will air on blog talk radio at 1 pm EST, 10 am PST, and 6 pm UK time. In this broadcast, I will discuss the benefits of having autism. Too often are the costs of living on the spectrum given more emphasis than the benefits. Hidden within an individual with autism is a bright mind, sometimes at the mercy of their body, and strong talents, that are waiting for the right conditions in order to shine. It is my hope that by raising autism awareness that those on the spectrum as well as parents, caregivers, and teachers can recognize the wonderful potential of those on the spectrum and make it more than just potential. Remember that you can participate in the chat room that will be ongoing during the broadcast. You can also call into the show to give your input by calling (619) 393-2848 or you can call in through Skype. I'm looking forward to what will surely be a great broadcast!


Junior Positively Autistic Ryans Spectrum Talk 03/05 by Positively Autistic | Blog Talk Radio

More about Autism and Employment


After my latest blog radio show this past Monday concerning autism and employment, I wanted to take a little more time to talk about this topic.  As discussed in my show, I believe that the biggest key to improving low autism employment rates is to raise awareness to employers about the benefits of finding uses for the strong talents hidden within individuals with autism.  These talents can only be brought out under the right conditions.  By increasing understanding about this issue, employers can overcome any uncertainty or lack of understanding and arrange a way to benefit both the company and the individuals on the spectrum.  To hear more about this topic, click the following link to listen to Monday's radio show.  There were some technical difficulties near the beginning, but overall, it was a great show:


This May, I have invited to speak at a symposium about autism and employment.  It is very important for me to use my talents and the great conditions I have experienced to help others to better understand the autism spectrum.  Also, in the future I hope to use my talents to become a world renowned fantasy novelist like J.R.R. Tolkien and his "Lord of the Rings" Trilogy, or J.K. Rowling and her "Harry Potter series.  My own fantasy series will not be ready for some time still.  In the meantime, I will continue to raise autism awareness through the resources I have available to benefit others, while at the same time getting my name out to the right people in a way that will help my  future career as a fantasy novelist.  I see it as a win-win situation.  

Who knows what blogging and online radio will lead to later this year and beyond?  There will be more information about the symposium when it becomes available.

Saturday, March 3, 2012

Create the Right Conditions


Every person is the result of the environment into which they are born, no matter what inherent talents they may possess. This is the same case with autistic individuals and their parents.  And yet, no matter what conditions parents are facing regarding financial stability and what not, is there no action that can be taken to provide the best possible environment for children on the autism spectrum?

For I believe that no matter what situation parents are confronted by, under the right conditions, anyone on the autism spectrum can make the best of those abilities they receive in exchange for whatever sensory issues or other problems they might endure.  Nothing in life comes without some sort of cost.  The greater the talents, the deeper they are within an individual on the spectrum, waiting for certain circumstance.  Under the right conditions, an individual on the spectrum can literally change the world.

The catch is that those individuals on the spectrum cannot create these conditions on their own.  They have no idea what the conditions are themselves, or if they do know, then it is in a form of thought that cannot be translated into language.  It is the responsibility of parents, teachers, caregivers, and therapists to bring out the best in that individual.  The individual on the spectrum did not ask for this, to not have complete control over their own body, to be trapped.  The mind is very active but trapped, waiting for an outlet of some kind.  I have spoken before of an autistic girl named Carly who confounded her parents once she learned that she could communicate her thoughts by typing, as I am right now.

I can guarantee that the words I am saying right now are not something that I could speak of in small talk at work, without great difficulty.  It is not so much as a problem with presenting my message than with my message being received as intended.  I could walk up to someone on the street and try to say all this, with no problem formulating the words and my message would not be received.  Someone might think, what a creeper with the underlying notion that people just do not talk this way, as I am presenting these words.  So this is the best way for me to communicate my insights into autism, through my strong and "eloquent" writing skills.  

The words I am typing right now are a direct result of the right conditions I found myself experiencing.  The skills are mine, but I cannot claim complete credit for what I do.  My parents, teachers, friends, and anyone who believes in my vision have all created the right conditions I need to succeed as a writer.  Without them, I would never come to recognize this part of myself.

Let me give two more examples in recent film of individuals off the spectrum who have succeeded because someone else changed the conditions under which they lived.  One is fictional, the other is not.  Michael Oher, star football player, grew up in the slums outside of Nashville Tennessee.  His strong talent as an athlete would never have been recognized if someone had not changed the conditions under which he lived.  Now he is a star football player, a story worthy of a book and film.  "Blind Side," which tells the story of how Oher's conditions were changed is an excellent film that I definitely recommend.  The other example is fictional.  In the film "Good Will Hunting," a genius worked as a low class janitor at Harvard.  In spite of his intelligence, he would have never been recognized if someone else had not changed his conditions.  This is another great movie to take the time to watch; but not one for children to view.  

Those on the spectrum cannot create the right conditions on their own.  That is up to parents, teachers, caregivers, and therapists.  Time is no issue.  It doesn't have to happen today or tomorrow or in ten years as long as it happens.  It will be worth it.  Thank you for sticking with me to the end of this unusually long blog post.  This is something that I think is really important.

Saturday, February 25, 2012

"I know more than I think you know..."

This is quote listed in the title came to me while looking into a news story about an severely autistic girl, Carly, who reveals her inner world through typing.  This quote is the silent cry that everyone on the autism spectrum is trying to reach out to those who are not on the spectrum, who run the world, and in some cases, claim to know us better than we know ourselves.  I'm sorry if this offends anyone but it is true.  This is the silent cry of many on the spectrum, as spoken by Carly, and as spoken by many others as well, I'm sure.  For a long time, I have considered myself to have a foot in both worlds.  While I am on the spectrum and experience autism characteristics, I am also capable of looking at autism as an "outsider" or someone who is not on the spectrum.  In the work place and at school, I can function without anyone being aware that I am on the spectrum.  It is my hope that this blog becomes as the title states, one of the many Voices from the Spectrum who are striving to be heard.

Thursday, February 23, 2012

A Sensory Example


Those on the autism spectrum experience a very different world than those who are neurotypical (NT) or not on the autism spectrum.  This can extend all the way to the way things are perceived.  Something that quite literally is seen, or felt, or tasted, or smelt one way by an NT individual can experienced differently by someone on the autism spectrum.  The example I am going to use is fleece.

Last fall in The Voice from the Spectrum, I discussed the YouTube videos created by Taylor Morris, who is on the autism spectrum and has since become a model.  In one of her videos, she discussed how physical contact with fleece can literally "hurt" her.  This caused me to recognize something that I had not really thought of.  Touching fine fleece causes a curious sensation for me as well.

A few days ago at work, I found a piece of clothing that was causing me a prickly sensation upon contact and I decided to try an experiment to see if a NT coworker feels the same thing that I do, suspecting that it was not the case.  I have been very open with this coworker about living on the spectrum.  This coworker has always accepted what I say in regard to living on the spectrum and relating to the life of a busy college student.  She told me that she did not notice anything extraordinary about the piece of clothing.  I described the sensation that I felt when I ran my hand over the cloth and this coworker and another coworker told me that they noticed nothing.

Even when prepared for it, hearing that still blew me away.  This fleece, which both coworkers described as feeling quite soft, seemed to grip my skin as I ran my hand over it.  I tried describing the feeling like sandpaper or something similar.  Since I am more sensory in-tuned to such things, I can only assume that the small fibers on the fleece caused the same reaction to everyone, those on the spectrum are just more sensitive to it.

This opens up many possibilities to me.  One thing I want to make clear is that parents of those of the spectrum should not dismiss their ASD child's reaction to the sensations of touching fleece or eating a food that has a texture which causes them to gag.  Since my autism is mild, the touch of fleece with is merely uncomfortable to me, can be downright painful to someone who has more sensory problems than me.  While the material seems to grip my skin upon contact, I find it easy to imagine that a moderate or severely autistic individual might feel like fleece is tearing at their skin.  I urge parents to not ignore instances such as this.  

When I was younger, all I wanted was to be understood by others.  This tidbit about fleece is just another piece of the autism puzzle.

Saturday, February 18, 2012

Junior Positively Autistic Ryans Spectrum Talk 02/20 by Positively Autistic | Blog Talk Radio

As spoken of in my previous blog posts, I cannot stress enough the importance of creativity in the lives of those on the autism spectrum. My own life has been influenced by creative activities in the two following areas: music and writing. In this Monday's broadcast of Junior Positively Autistic: Ryan's Spectrum Talk, I will discuss the importance of creativity in the life of someone on the autism spectrum. Also, I will relate my own creative experience in the areas of music and writing. Tune into this show this coming Monday, February 20, at 1:00 pm eastern standard time, 10 am Pacific Standard time, 6 pm UK time. Feel free to participate in the chat room. Remember that you can call in using Skype, or by calling (619) 393-2848.

Junior Positively Autistic Ryans Spectrum Talk 02/20 by Positively Autistic | Blog Talk Radio

Overcoming Barriers


Over the course of my life, I have overcome many barriers to achieve all the things that I have accomplished and reach the point I am at today.  In this blog post, I am going to discuss many of the barriers that I have vanquished.  We all hear that those on the spectrum have to overcome many challenges to live a successful, independent life.  However, I feel there is great uncertainty involved with this.  For many parents and individuals on the spectrum, looking to the future is like trying to peer through a vast fog, beyond which nothing is known for sure.  It is my hope by listing my challenges that I have overcome, I will pave the path for many parents who are looking for a glimmer of inspiration.

My first barrier I faced was a speech barrier.  When I was two years old, I lost what speech skills I had then obtained.  Gradually, my mom worked with me by talking to me and playing music.  Eventually, I was able to regain my verbal language skills.  My second barrier is what I will call my "shyness barrier."  Even after I regained my speech skills, I never really talked to anyone besides my parents.  Over time, I came out of my shell and made friends, some of which I know today, almost twenty years later.

The next barrier I overcame was the academic barrier.  Prior to eighth grade, I had nearly been held back a grade on more than one occasion.  It was a true achievement, not to mention surprise, to make the A/B honor role, with mostly special ed classes.  Through high school, I had to break through the wake of my depression I had experienced in middle school and gain more self confidence.  Continuing the honor role after moving out of special ed in science and history helped me to recognize that maybe I was as smart as people told me I was.  Throughout high school, I also made many friends and expanded my social boundaries.  Admittedly, many of these friends had no idea what I had experienced just a few years previously.

When I graduated from high school into college, I was doubtful my academic success would continue, since there is no special ed in college.  My first semester proved me how wrong I was.  I started college with a 3.84 GPA.  The lowest grade I received during the first academic year was an A-.  Now I have nearly completed college and have still received all A's, B's, and a handful of C's since I first started college.

When I started this blog, I broke a barrier as well.  Prior to that time, I considered knowledge about my autism to be private information.  Only family and a handful of friends knew that I was on the spectrum.  Sharing information and insight of my condition to faceless people I would never meet, was frightening initially.    Over time, I became more comfortable.  Right now, I know that I am making a difference because you have taken the time to read my words.  I hope that by sharing the challenges I have overcome, I might instill hope in others who really need it.

Advantages of a Gluten Free Diet

A friend recently gave me the idea to write about the advantages a gluten-free diet may have in the behavior of an individual on the autism spectrum.  A gluten free diet is defined by the exclusion of the protein gluten, which is a protein found in foods containing wheat and rye.  Following such a diet can be difficult and expensive, however, studies have proven that the implementation of a gluten free diet can have reduce autistic characteristics.

A gluten free diet, while difficult to maintain, has many mental and physical advantages.  Eating gluten free food goes great lengths towards losing weight and achieving digestive health.  This kind of diet is the only treatment for those suffering from Celiac disease.  It has been shown to reduce varied other conditions ranging from arthritus to seizures.  To view my research source, click the following link for a comprehensive link to listed benefits: http://www.glutenfree-diet.org/benefits.htm

As with every other aspect of the autism spectrum, no two individuals on the spectrum respond to a gluten free diet in the same manner.  Varied results have been reported, ranging from mild improvement to a dramatic reduction of autistic behaviors.  Other benefits have been observed by combining a gluten free diet with other diets.  For more information, click on the following link to view my research source: http://www.autismweb.com/diet.htm.

To make this clear, I am a writer, not a professional.  To find out if a gluten free diet might be appropriate for your child, it would be best to consult your child's doctor.

Saturday, February 11, 2012

A REMINDER

To close out this week, I wanted to remind my readers to check out my new blog radio, Junior Positively Autistic, Ryan's Spectrum Talk, on Blog Talk Radio.

Click the following link to view the show:

http://www.blogtalkradio.com/positivelyautistic/2012/02/13/ryans-spectrum-talk

This past Friday, I performed a test to gain a feel for radio broadcasting on blog talk radio.  It went over so well, that I was told that I should share this test as a preview since I did such a good job.  That is a good sign, considering how performing radio talk shows is a new experience for me.  To see this preview of what I might talk about, click the following link:

http://www.blogtalkradio.com/positivelyautistic/2012/02/10/junior-positively-autistic-ryans-spectrum-talk-test-1

Creativity is a More than a Want...It is a NEED


Valentine's Day is approaching and the demands at my job are rising.  I find myself getting worked up from what needs to be done. However, my responsibilities at work are not the source of my restlessness and unease.  Imagine that you feel like something is wrong, like something needs to be done, and like something you are doing is not good enough, I feel all those things from time to time.  The source of those feelings?  Simple.  I haven't been creative enough lately.

I know of a solution is to solve that problem, to put my mind more at ease.  The solution is simple but by no means obvious.  In order to think clearly at work, I need to write.  More specifically, I need to find some way to release my creativity that is building up inside me.  Simply jotting words down on a page is not enough.  I have to listen ti myself and find a way to express what needs to be said.  Without fail, I always feel better afterwards.  This doesn't effect just work, it impacts my peace of mind.

This is how important it is to find a way to express creativity.  Writing is the answer to my problem in order to regain my peace of mind.  The answer will probably be different for other individuals on the spectrum.  Someone might find peace of mind through singing or painting or other means.  I used to look for external sources for the answers to my restlessness when the answer was on the inside all along, waiting to be expressed.

Wednesday, February 8, 2012

Positively Autistic Ryans Spectrum Talk 02/13 by Positively Autistic | Blog Talk Radio

Starting next week, I will be hosting my own online radio show, "Junior Positively Autistic: Ryan's Spectrum Talk!" This show will air every Monday at 1 pm eastern standard time, starting on February 13th. Feel free to join me in the chat room or call the following number (619) 393-2848 to give me your thoughts on the air. You can also call in via Skype. I'm really looking forward to another opportunity to share my insights and experiences of living on the autism spectrum. Remember that those on the spectrum can literally change the world under the right conditions. There is no better time to begin that change than now!

Positively Autistic Ryans Spectrum Talk 02/13 by Positively Autistic | Blog Talk Radio

Saturday, February 4, 2012

Check out this Online Autism Radio Show!

Here is a message posted by my friend, Joe Westlake, earlier this week on Facebook:

“Join us live for the Positively Autistic Radio Show this upcoming Wednesday which is one every Wednesday… Positively Autistic: Marilyn and Joe’s Poetry Hour.  This is a show that runs weekly, by poet and host Marilyn Ann Francis, and co-host Joe Westlake.    Join us from 6m UK time, 1 pm EST and 10am PST.  Please feel free to join us in the chat room, and don’t forget you can call in to talk to and read poetry.  This show is all about poetry and Autism Awareness.  Call in on 1-619-393-2848.  For more information, visit: www.positivelyautistic.com”

I have tuned into this show a few times and read a few of my own poems this past week.  I encourage my readers to tune into this show Wednesdays, 1 p.m. eastern time, 10 a.m. pacific time.  This is another great example of the achievements of those on the autism spectrum.  Listeners can call in to the show through the number listed above or through Skype.  If you don't want to talk or can't get through, you can participate in the chat room.  This displays great examples of what those on the autism spectrum can achieve under the right conditions.

Blind Boy with Autism Sings Heartwarming Song

My grandparents recently brought this inspiring video to my attention.  This ten year old has autism and is blind.  I cannot begin to imagine how he views the world.  Despite his challenges, rocking on stage while he is introduced, this boy sings an inspiring song, bringing light to the fact that those on the autism spectrum can accomplish extraordinary achievements under the right conditions. Things that people off the spectrum can accomplish only through years of study and hard work.  There are two sides to every coin.  This boy might live in a dark world that is dictated by his senses.  Try listening to that song with your eyes closed.  Would you be able to tell that he has autism based on the way he sings?

To watch this video, click on the following link:

Friday, February 3, 2012

Autists are "square pegs" in a world filled with "round holes"


“Autists are the ultimate square pegs, and the problem with pounding a square peg into a round hole is not that the hammering is hard work. It's that you're destroying the peg.”
― Paul Collins 
 I saw this post on Facebook earlier and it reminded me of something that is frequently on my mind.  As mentioned in previous posts, I grew up watching the film "Apollo 13."  If I were given a few hours of sustained concentration, I could probably recite that film word for word.  That being the case, it should be known that I am reciting all the background information for this blog post from memory using what I can recall from the film and my interests in space travel from when I was younger.  I ask everyone to bear with me as I build this up to my point. 
One of the problems facing the astronauts on their journey back from the moon is something that we all deal with on a daily basis without really thinking about it: carbon dioxide.  This is the waste gas that is exhaled every time we take a breath.  Under normal circumstances on the Apollo missions, both the command module, which was the section of the vehicle that the astronauts use to re-enter earth's atmosphere, and the lunar module, which was the part of the space craft that landed on the moon, each had these filters to recycle carbon dioxide exhaled by the astronauts.  In a confined space 100,000 miles from home, the carbon dioxide exhaled by the astronauts has nowhere to go and would replace the oxygen, if not for the filter.  The Apollo 13 mission was far from normal.  The astronauts and the ground crew below had to push the capabilities of the space craft to the ultimate limit.
What happened in this case is the astronauts were forced to shut down the functions of the command module to conserve power for reentry and spend their trip to earth within the lunar module.  There were three crew members that traveled to the moon using the Saturn V spacecraft.  They were the flight commander, the lunar module pilot, and the command module pilot.  Under normal circumstances, the command module pilot stays in the spacecraft orbiting the moon while the other two crew members descend to the surface in the lunar module.  This being the case, the lunar module was designed to accommodate only two people.  The Apollo 13 circumstances exceeded this capability, so the carbon dioxide filters in the lunar module were saturated by circumstances the designers never expected them to face.
This brings me back to the quote above.  The given alternative for the astronauts was to use the carbon dioxide filters from the command module in exchange for the saturated filters in the lunar module.  However, both filters were designed by two different companies.  The filter in the command module was square and the one in the lunar module was round.  With the lives of the astronauts at stake, the crew on the ground had to find a way to literally fit a square peg in a round hole with the lives of the astronauts at stake as the slowly suffocated from excess carbon dioxide.
The ground crew bellow was given the task of building this filter to ACCOMODATE for the difference in specifications.  This was a high stakes craft project using nothing but the items the astronauts had access to in their space craft.  Once the design was complete, mission control relayed the instructions for the filter to the astronauts and walked them through the construction process for the make-shift device that saved their lives.
In a metaphorical sense, this is what individuals with autism face on a daily basis.  Ranging from a parent who has a child with Aspergers Syndrome, to another parent who has a nonverbal child with severe autism, the concept is the same.  Those children are square pegs in a society designed for those who are round, so the world functions around base assumption that everyone is round.  Trying to hammer an autistic child into a situation that they are not able to handle does not solve the situation.  My mission while raising autism awareness is to show people that those with autism are not disabled or incapable of functioning in a world made of round holes.  With the right thinking, experimenting, and accommodations using what people have available to them can make these situations work.  Given that this Apollo 13 filter was built by the brightest scientific minds of the day, not everyone has access to reasoning capability like that.
Parents of children with autism: can anyone really claim to know your child better than you do?  You have been through everything with them as you try to understand how to accommodate their individual needs with the resources you have.  Through the human spirit of becoming greater than you are presently, I guarantee that it can be done.  I am living proof!                                                                                                                                    

Sunday, January 29, 2012

A Message of Inspiration

I saw this image on Facebook earlier today.  This really does a great job at highlighting everything I have been trying to say the past few months about autism.  There is always hope involved with autism so don't ever give up!



This has been viral throughout Facebook, but just to be safe, there is no copyright infringement intended by displaying this photo.

Autism is Normal...For those on the Spectrum

Some view autism as an abnormality, as though the difference in condition is something to be ashamed of.  Others view autism as a hassle.  Something that represents two parents abandoning the lives they had planned in service of their child who is on the spectrum.  I don't agree with either of those viewpoints.  While there are costs associated with autism it is important to keep in mind that there are costs associated with everything.

Autism itself is not preventable.  There are many costs to having autism but there are also measures that can be taken to prevent meltdowns.  The measures will be different for every child.  Every autism child is unique so an unconventional parenting approach is something to consider if it meets the needs of a child on the spectrum.

At the end of this blog post, I have included a link to another blog that I recently discovered.  This provides one man's unconventional parenting approach for his severely autistic son.  You might not agree with all of these approaches, but remember that those with autism are foreigners to the human race. Those on the spectrum are as different from those off the spectrum, and each other, as those from South East Asia are different from those who are from the United States.

To read this blog, click the following link:

Monday, January 23, 2012

Some Shared Inspiration

When I was twelve, I was dealing with a lot of issues.  I had recently been diagnosed with autism and my medications had been changed, but the trouble was far from over.  Worst of all was the depression I was dealing with.  One day, my mom took me upstairs and played a song by Celine Dion, and told me how that song had reminded her strongly of my situation.  The gist of the song was to never lose hope.  I could not find any strong inspiration at that time through the haze of pain, but that song provided a grain of hope that things would not always be like this.  It told me that after a lot of time and effort, I would beat all my problems.  Today, I am proud to say that I have.

I referenced Youtube to see if I could find the music video.  Listening to this song again after so much time brought back mixed emotions.  The pain from that time is a distant memory that almost seems like a dream at this point.  I hope by sharing this experience that this song will bring you the same inspiration that it brought me.

http://www.youtube.com/watch?v=T6wbugWrfLU&ob=av2e

Saturday, January 21, 2012

Carly's Story


Over the past few weeks, I have seen this video around Facebook, but not until an old friend recommended it to me did I finally take the time to watch it.  This video is around ten minutes long and features the remarkable development of a moderately autistic girl named Carly.  I was completely astounded by what this teenage girl could accomplish through her words.  It is far more significant than anything I have ever done.  She had been locked inside her head for her entire life, unable to control her body, responsive to the painful sensations that dictated her life.  So called "professionals" dismissed her as "mentally retarded" based on what they could see.  To take a quote from the film "Polar Express:"

"Sometimes the things that are most real are the things we can't see..."

As a member of the spectrum, I absolutely HATE it when people take me at face value.  I may not be the most attractive person, I may not always show that I am listening, I may make faces when people look at me (there are some people who mock the expressions I make when I avoid sudden eye contact), but this is who I am.  Even so, this is nothing compared to what Carly has gone through.  I see the world through the eyes of one with autism, but I can also function at times without anyone suspecting that I am different.

It is all dictated by sensations.  I am not the best speaker.  At times, I am hard pressed to convince myself how articulate I really am with words when faced with an embarrassing situation.  On the other hand, Carly has lived her life unable to communicate whereas I experience difficulties at times.  We both want to help people to understand us.  All she wants is to be normal and all I want is for others to understand people like us.  We didn't ask for this.  This is the hand that we were dealt, and we have to work with what we were given.  We who have autism are gifted people who, at times, are trapped in our own bodies. Not a day has gone by when I didn't wish a sensory overload upon someone who doesn't understand. I would rather be viewed by what I have to offer rather than what I appear to be on the surface.  Every individual on the spectrum, whether we have severe autism, mild autism, or Aspergers Syndrome feels the same way.  I am convinced of that.


To view Carly's story, click the following link:

http://www.ebaumsworld.com/video/watch/82197504/

More about the Diagnosis Change

I have performed some research over the past day and examined arguments both in favor and against this proposed change in the autism diagnosis.

One argument I have seen used against those with Aspergers Syndrome (who are spearheading strongly against the proposed changes) is that those with Aspergers are against change and their reaction is nothing more than the expression of their discomfort.  One doctor was quoted as saying she was "sorry" that she offended those with Aspergers who are against the changes.  This same article stated that those who are against these changes feel that their identity is threatened but the changes did "make scientific sense."

It is true that those with Aspergers Syndrome, and autism in general, are uncomfortable with change, more so than those off the spectrum. This is a well know trait that we have, my self included.  After my post last night, I wanted to take a step back and look at this differently.

I want to make clear that the only objection I have against this change in diagnosis is the denial of necessary services to those who may not meet the new criteria but still need some help.  If those who are on the milder end of the spectrum still receive the services they would have other wise received under the previous diagnosis requirements, then I have no objection to these changes.  If these changes make things easier/better for those whose lives are impacted by the spectrum, then by all means, implement the changes.

To read the MSNBC article referenced in this blog post, click the following link:

http://www.msnbc.msn.com/id/35348917/ns/health-mental_health/t/proposed-autism-diagnosis-angers-aspies/#.TxoaXW-JeQk

Friday, January 20, 2012

Change...for Better or Worse?


There has been much talk lately about the upcoming changes in the autism diagnosis.  Opinions range from acceptance to blatant hatred of the new measures.  It is a difficult topic for me to consider.  I can't help thinking how different I would be today if I had not received the help I did at age twelve that altered my life.

My specific autism diagnosis is pervasive developmental disorder-not otherwise specified, which is one of the autism diagnosis specifications that will be eliminated once the new measures are introduced.  Concerning this legislation, I see two areas of implication: the medical implications, and the social implications.  Grouping the autism diagnosis into one category does add convenience and understanding to doctors and parents, but as an individual on the mild end of the autism spectrum, had I gone on with my life without the diagnosis and without the change in medications, I would still be struggling now as I was when I was twelve.  I would not be able to relate such insights through writing as I do now because I would still be in the same mindset I was at age eleven.

This would only be the case if my autism had continued to go unrecognized.  I have to say that those with PDD-NOS have more to be worried about than those with Aspergers Syndrome because the PDD-NOS diagnosis is such a subtle condition that no two doctors will give the same results.  I am a successful person now because of the intervention I received more than ten years ago.  It pains me to think that had I been born twenty years later, I would face the prospect of never receiving the intervention that I did and thereby never fully recognizing my potential, as I am today.

People tell me all the time that I do not seem like I have autism, and there are times when I would agree with them.  However, they do not know of all the effort that my parents and I went through to get where I am today.  It didn't just happen, it was hard work.  To think that children today who are like I was when I was younger face the prospect of never receiving intervention, to live their lives without fully recognizing their potential...it is frightening to me.  It really is.

There are many different viewpoints concerning this issue and I have just presented mine.  I am interested to know whether my readers agree with what I have to say.  Feel free to leave any feedback you might have as comments following this blog post or on my Facebook page.

Saturday, January 14, 2012

Dreaming on the Spectrum


Lately, I have found myself to be preoccupied with my subconscious.  Maybe that's because I have remembered so many of my dreams lately.  I find my dreams to be especially entertaining at times. A few weeks back, someone asked me if I would sing Irving Berlin's "White Christmas," while playing the piano.  I said sure.  Never mind that I can't sing, or that I have no experience playing the piano. I was disappointed that I woke up before I got a chance to play.

My dreams are very vivid to me and I have remembered dreams that I have had as a child.  One particular dream was of a bridge to some sort of a houseboat.  I remembered the feeling of urgency more than anything else.  There was something that I really needed to do, but I woke up before I could do it.  That dream is from the time when I was nonverbal.  It has been retained for all that time, but it is nothing more than a few brief images.  This is probably my oldest dream that I can still recall.

Some dreams have repeated themselves over and over again in my mind.  When I was thirteen, I watched the dark comedy film "Tremors."  It was one film that really scared me.  I have had nightmares about those monsters for years.  Even now, when I can watch the films without being frightened, I still have those dreams.  My latest one was last week.

Those on the autism spectrum have enormous creative potential.  If my dreams are any indication, that potential can be recognized through the sleeping exploration of the subconscious. Are you on the spectrum or off?  Are my dreams any different than yours?  Does the fact that my mind works differently because of my autism change the way that I dream?  Are those off the spectrum really any different than those who are on the spectrum?  My autism is very mild, do those with severe autism dream any differently?  Just something to think about.

I'll Bee Thinking

In this post, I am going to try to describe how someone with autism might think.

Ever since I was young, I have had a fear of bee stings.  This is understandable, since I am allergic to bee stings. I have been stung five times in my life.  Although I couldn't tell you the exact time when these painful incidents took place, I can tell you my age: I was stung twice when I was three, two more times when I was eight, and once when I was 21.  I have never had any reason to doubt that bee stings were harmful to me.

A conversation earlier at work left me wondering.  I heard two workers talking about bee stings, and how one coworker had heard that bee stings were actually beneficial.  This coworker went on to say how bee stings could be used to help arthritis.  Regardless of whether this is true, I found myself following two thought patterns after I had walked out of earshot.   One of those thought patters reflected how that might be true for some people, but it was definitely not true for me, as has been repeatedly shown through allergic reactions to bee stings. 

Another thought pattern coincided with the first one.  You could say that I was thinking about two different things simultaneously.  This second thought pattern reflected how I might have received this information differently if I was younger.  I imagined how I might have reacted if I had actually believed the information and what I might have said or done to reflect any arguments I would have faced.

You might ask, oh this is interesting, but what is my point?  My point is that something I had believed to be true my entire life was challenged and I had the freedom to examine this information from simultaneous angles at the same time.  This mental process draws focus away from verbal communication.  Had I been forced to make conversation while in that mental process, I know I would have not been able to relate what I felt verbally.  It would have been forced through a strainer, all these thoughts and insights reduced to minimal, one word answers.  This leads into my point: the thoughts or feelings of those with autism are too complex to easily be translated into words.

Since I was thinking about several things at the same time and someone talked to me, asked me what was on my mind, how would I have answered?  Complex thoughts combined with substantial verbal communication skills (when compared to my writing skills) leads me to have extreme difficulty relating what I am thinking when I am in that state of mind.  It does not mean that I am unintelligent if I can't answer a "simple" question like, what is on your mind.  It means that there are other factors involved that people don't typically deal with.

Tuesday, January 10, 2012

Is Narrow Vision Better? Part Two


Somebody told me recently that she had heard that without individuals with Aspergers Syndrome, there would be no NASA.  I definitely believe it.  I grew up watching the film "Apollo 13."  In this film, the Saturn V spacecraft carrying Jim Lovell and his crew to the moon had an unprecedented problem that left the spacecraft crippled.  Not only did they have to abort the moon landing, but each day became a fight for survival.  Their safe landing would not have been possible without the help of the ground crew below.

This is April of 1970, where the laptop I am using to type this blog post is probably more sophisticated than the computers NASA had access to at the time.  They succeeded through problem solving and pushing the machinery available to the absolute limits.  I can picture those with Aspergers Syndrome that may have worked without an official diagnosis, contributing their narrow vision and high intelligence to the tasks at hand.

Through narrow vision, an individual on the high functioning end of the autism spectrum can examine a small range of products and ideas with utmost efficiency and understanding.  In a range of problems where this type of thinking is advantageous, these individuals can really shine.  This does not mean that we should not be encouraged to broaden our horizons, although we might resist.  In my next post, I will discuss how narrow vision might be problematic and what solutions I have used to overcome these challenges.

Saturday, January 7, 2012

Is Narrow Vision Better? Part I

A most distinguishing trait to those on the autism spectrum, particularly those with high functioning autism and Aspergers Syndrome, to have intense narrow focus towards a topic of choice.  This allows those with high functioning autism, and Aspergers in particular, to see things differently.  Through this, people with Aspergers, and myself to an extent, can see a small number of topics, like fantasy, school subjects, or games very clearly and have difficulty stepping back to see the big picture.

While this can allow those on the autism spectrum to examine a small number of subjects in extraordinary depth, it can be limiting, as the working world requires employees to be able to multitask and have a wide range of talents.  In my next post, I will go further with this topic.

Follow up Interview Post


I wanted to take a moment in this blog post to follow up on a matter I mentioned during my previous blog post.  This is the post where I discussed whether having high functioning autism can be advantageous during a job interview.  I received a moderate response on Facebook.  One reader commented saying that she had heard that without individuals with Aspergers Syndrome, NASA would not exist.  This is understandable, given the high intelligence and intense focus that are characteristics to those who have Aspergers Syndrome.

In my last blog post, I mentioned that I had an upcoming interview for a marketing internship.  Those readers I have connected to through Facebook will already know this, but I was selected as Assistant Director of Social Media Marketing for a small restaurant chain.  This is due, indirectly, to having high functioning autism.  I feel that I was selected more for the strong creativity I can contribute to the department than for my social media marketing skills.  It is my autism which grants me strong creativity in exchange for the social difficulty I have experienced in the past. 


I encourage those that might be struggling with the negative aspects of the autism spectrum to nourish their creativity.  If nothing else, I am confident that a creative outlet will lead to peace of mind.

Wednesday, January 4, 2012

Autism...An Employment Advantage?


In this difficult job market, employers are looking for skills that separate potential employees from all the others applicants.  A question that I am going to raise in this blog post is this: can high functioning autism, PDD-NOS, or Aspergers Syndrome be used as an advantage during a job interview?  It is true that there are many barriers that need to be overcome in order for those with autism to function in the working world, but perhaps that is exactly the point.  In order to break through the many barriers caused by autism, those on the high functioning end of the spectrum develop perseverance, determination, and stamina in levels not found in those off of the autism spectrum.  This popular quote rings true: "Whatever doesn't kill me only makes me stronger."  By facing challenges on a daily basis from a very young age, those on the autism spectrum truly do become stronger.

I have an interview for an internship tomorrow morning.  This interview is for The Director of Social Media Marketing for a food chain.  My skills as an intern reporter for The Oakland Press and the role that Facebook plays in marketing my blog posts makes me a strong candidate for this position.  If I do end up discussing my autism during this interview, I will say something to this effect: I have had to break through many barriers in my lifetime that many people never have to face.  By doing so, I have developed many strengths that I can use to benefit the company (I am interviewing for).  What was once a hindering weakness is now a something I use to help others, through my strong skills is a writer.

Do you think that high functioning autism can be used as a potential strength during a job interview?